first day of preschool
Hey all sorry it has been so long, it has been a difficult couple of weeks. Unfortunately Amélie's reflux took a nasty turn for the worst and we really have been having a hard time with it. She was back with Dr.N on Monday past and we were explaining to him that there wasn't any type of dairy that she can handle. Those medicines listed in the last post seemed to be making her worse as well, so he said he wanted to try her on this supplemented non dairy or protein milk. So the next day I gave her the milk..... 1½ozs later and she was puking! She went to see Santa about an hour later and began puking so badly that we had to leave and she was in the shower for about 2 hours! We put her in the shower when she is getting sick as it calms her down and washes the sick away stopping her mouthing it, making her puke more! We have been going through her diet with a fine tooth comb and have been able to settle her sick if we stick to the following; White toast with margarine (butter makes her sick), pastas with oil, potatoes of any type as long as the sick is off, carrots, green beans, peas, chicken, fish fingers, white fish, mince, chilli, rice, water with a little diluted juice. And that is basically all! Hard ain't it? She still takes her fish oils in her horlicks drinks but now it is made with water not soya milk. She lost ½ a kilo in a month so we are now concerned with her growth but I am starting her on a food supplement in the morning so that she is getting all her vitamins and minerals because she ain't getting them from her food!
Anyway on to the big day at hand, Christmas. She loved Santa, I couldn't believe that she liked him, so much so she gave him an 'awww' which in Kiki's language is love. She really took to him and now when she sees him on TV or in a book she just stares and smiles. She hasn't paid hardly any attention to the Christmas tree and hasn't attempted to pull it down or even touch it really, I can't wait to see her face on Christmas morning!
AND on a final note she had her trial with the Tobi eyegazer last week. All I have to say is it was magical watching her make her own choices. We will be fund raising for this in the new year so would appreciate keeping us in mind when it comes around to that time, and on that I want to wish you a very merry Christmas and a fantastic new year, keep hoping and praying for that cure to come! Xxx